If you were a 23andMe customer, your genetic and personal information could be used in civil or criminal cases, targeted advertising, medical discrimination and so much more.
Articles on DNA data
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The laws around donor anonymity could change as at-home DNA testing gets more popular.
Commercial tests often provide inconsistent results. Here are six questions to ask yourself before you pay for one.
If storing DNA for criminal investigations helps identity the perpetrators and eliminate the innocent, why don’t we include samples from everyone?
A US judge has allowed police access to the major DNA database without users’ consent (including Australian users). It’s a timely reminder that we urgently need genetic privacy legislation.
When you share your genetic data – even with the NHS – you don’t know where it will end up, or how it will be used.
Data and privacy issues are tangled up in the DNA reports consumers get from big genetic testing companies – and the third-party sites they turn to in order to glean more from their raw DNA.
Our ability to reconstruct physical features from DNA is advancing, but can we ensure the privacy of “anonymised” genetic data if we can predict the face of its owner?
Data ethics should pay much more attention to the social value of research
The rapid growth of genetic testing and data-gathering could revolutionize health and medicine if governments work to protect people against privacy and societal risks.
Top contributors
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Professor of Genetic Epidemiology, King's College London
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Professor of Comparative Policy Analysis, Universität Wien
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Associate professor, Queen's University, Ontario
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Associate Professor of Economics, Queen's University, Ontario
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Lecturer, Business School & Centre for Policy Futures, The University of Queensland
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Research fellow, The University of Queensland
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Research Scientist in Biostatistics, University of Washington
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Associate Professor of Law, University of Auckland, Waipapa Taumata Rau
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PhD Candidate, School of Law, Trinity College Dublin
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Ethical, Legal & Social Adviser in Public Health Genomics, Monash University
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Associate Professor in Law, University of Leicester; University of Oxford
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Professor of Law, City University of Hong Kong
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Lecturer in Law, Manchester Law School, Solicitor (non-practising), Manchester Metropolitan University
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Professor of Bioethics and Health Research, University of Manchester
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Wantz Professor of Bioethics, University of Michigan