Aileen Editha – The Conversation

News of 23andMe’s bankruptcy has reignited concerns about data privacy, particularly what happens to customers’ personal and genetic information. (Shutterstock)

March 28, 2025

What users need to know about privacy and data after 23andMe’s bankruptcy filing

Aileen Editha, Queen's University, Ontario

The possibility of new ownership over 23andMe has some customers concerned about how their sensitive genetic information will be handled in the future.

23andMe’s headquarters in Mountain View, Calif., in April 2018. Since its founding in 2006, 23andMe has sold over 12 million testing kits globally. (Shutterstock)

December 11, 2024

23andMe’s struggles are a sign that direct‑to‑consumer DNA testing needs stronger oversight

Aileen Editha, Queen's University, Ontario

As 23andMe struggles financially, it’s a good time to reconsider issues on privacy, use, and commercialization of genetic information.

The HeLa line of immortal human epithelial cancer cells was derived from cells taken from Henrietta Lacks when she was a cancer patient in 1951. (Wellcome Collection: Anne Weston, Francis Crick Institute)

August 3, 2023

Settlement with family of Henrietta Lacks is an opportunity to reflect on inequalities in genetic research

Aileen Editha, Queen's University, Ontario

The settlement is a long-awaited moment of victory for Henrietta Lacks and her family. But the battle for justice in genetic and medical research is not over yet.

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