- Research Fellow, Central Clinical School, Faculty of Medicine and Health, University of Sydney
Dr. Aaron Schokman is a lived experience Research Fellow at The University of Sydney and is affiliated with the Charles Perkins Centre and the ARC Centre of Excellence for Children and Families over the Life Course. His research interests include development of Patient-Reported Outcome Measures (PROMs), psychometrics, knowledge transfer and ways to improve lived experience participation across research and health policy development. Aaron was diagnosed with narcolepsy type 1, a rare and debilitating sleep disorder in his late teens that sparked his interest in research, co-design and all things sleep.
Experience
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2023–presentResearch fellow, The University of Sydney
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2020–2023PhD Candidate, The University of Sydney
Education
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2023The University of Sydney, Doctor of Philosophy
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2019The University of Sydney, Master of Philosophy
Publications
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2024A qualitative exploration of the lived experience of mothers caring for a child with narcolepsy, Journal of Clinical Sleep Medicine
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2024Making sense of narcolepsy: A qualitative exploration of how persons with narcolepsy perceive symptoms and their illness experience, Sleep Medicine
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2022Evaluation of psychometric properties of patient-reported outcome measures frequently used in narcolepsy randomized controlled trials: a systematic review, Sleep
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2021How patient centric is health policy development? The case of the Parliamentary Inquiry into Sleep Health Awareness in Australia, Australian Health Review
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2018Agreement between subjective and objective measures of sleep duration in a low-middle income country setting, Sleep health
Professional Memberships
- Australasian Sleep Association
Contact Aaron for
- General
- Media request
- Speaking request
- Consulting / Advising
- Research collaboration
- Research supervision
- Location: Sydney, Australia
- Website
- Article Feed
- ORCID
- Joined
