Social licence and consent are central to trust in state data systems. Changes to the way census information is gathered make this especially important for Māori.
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According to some observers, the ‘hottest topic’ for 2025 is whether universities have lost the public’s support to operate.
Individualised notions of consent for data use do little to help societies seeking to address collective health crises and other community needs.
There are concerns about how health data are used, but research shows support for uses with public benefits by health-care providers, governments, health-system planners and university-based researchers.
Top contributors
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Professor (adjunct) and Senior Fellow, Institute for Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto
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Professor of Health Services and Policy Research, University of British Columbia
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Research coordinator, Groupe de recherche interdisciplinaire en informatique de la santé, Université de Sherbrooke
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Public Engagement Fellow, Faculty of Medicine, Memorial University of Newfoundland
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Professor of Medicine, Université de Sherbrooke
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Co-Founder of The Data Tank and Co-Founder and Chief Research and Development Officer of the Governance Laboratory (GovLab), New York University
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Emeritus Professor of Cultural Studies, The University of Queensland
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Professional Teaching Fellow, Faculty of Arts and Education, University of Auckland, Waipapa Taumata Rau
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Lecturer in Indigenous Communication, University of Auckland, Waipapa Taumata Rau
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Associate Professor of Politics, Te Herenga Waka — Victoria University of Wellington
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PhD Candidate, School of Psychology, University of Auckland, Waipapa Taumata Rau